THE 2003 BARNARD SUMMIT: WOMEN AND HEALTH

INTRODUCTION
  
On Saturday, April 5, 2003, Barnard College in New York City hosted The Barnard Summit: Women and Health, a daylong forum on women's health trends worldwide. The Summit addressed the latest thinking on gender-specific diseases, changing attitudes toward health care for women and the relevance of women's health to economic progress in the developing world.


Barnard President Judith Shapiro

With the goal of reaching a broad understanding of changing trends in gender-specific medicine, emerging attitudes toward health care for women and trends in the developing world, the Summit drew an audience of nearly 700 women and men, including health care professionals, scholars, Barnard students and alumnae and journalists. The day-long forum, a leadership initiative of Barnard President Judith Shapiro, brought together a distinguished group of 21 panelists, including top U.S. government policymakers, influential health advocates and leading medical specialists and researchers, to navigate the often-fragmented pieces of information on diseases, choices in treatments, and changes in medical technologies. The event was covered by national journalists, including correspondents from The New York Times, Glamour, Newsweek, Psychology Today and Time magazines.

While the discussion ranged over many topics, the following points emerged as key to women's health concerns today:

  • women must take personal responsibility for women's health issues
    everywhere;
  • access to adequate health care in the United States.and abroad must become a priority;
  • gender-specific diseases, research and treatment around the world must be taken seriously
  • poverty impedes progress on women's health in the developing world

The Barnard Summit was supported by the Bill & Melinda Gates Foundation, Merck & Co., Inc. and Pfizer Inc.

A report summarizing each of three panel discussions -- health trends, changing health care, and women's health globally -- follows:


WOMEN'S HEALTH TRENDS: A CURRENT ASSESSMENT

Women's Health Issues Reflect Positive Changes and Difficult Challenges


Not long ago, if a woman complained to her doctor of chest pains, she probably would have been told to take antacids and sent on her way. Today, doctors are more likely to treat this complaint seriously, based on the evidence that more women die from heart disease than from any other illness.
  
The change comes largely because of a quiet but critical movement that has been stirring over the past decade, one being waged not in rallies but in laboratories, clinics and hospitals. Gender-specific research, technological advances in treatment for women and media coverage of both have distinguished women's health issues as unique and altogether different from men's, paving the way toward gender-appropriate treatment and help.

But not all women can appreciate the good news. Many throughout the world remain unable to access or afford adequate care for even their most fundamental health needs.


Members of the first panel. From left to right: Joan Brumberg, Judith Shapiro, Dr. Cristina Beato, Dr. Marianne Legato, Cindi Leive, and Dr. Judith Reichman

According to experts who assembled at the 2003 Barnard Summit: Women and Health positive changes have occurred in the study of women's health, but much work remains to insure equitable care for women around the globe.
  
With the goal of emerging with a better understanding of women's health trends globally and access to health care, 700 women and men, including health care professionals, scholars, journalists, Barnard students and alumnae, attended the Summit. The day-long forum brought together a distinguished group of 21 experts and specialists, including top U.S. government policymakers, influential health advocates and leading medical specialists and researchers, for discussion of findings in medical research, challenges in health care and influences on global health issues.


Dr. Marianne Legato

"While Americans spend nearly $35 million annually on weight loss products and programs, nearly half of all women of reproductive age in regions of Africa and South Asia continue to be undernourished," said Barnard President Judith Shapiro, moderator of the first panel on health trends. "But positive trends must be emphasized. Women have taken an increasingly active role as health care providers. Nearly half of all medical school graduates in the U.S. are women. The topics are many and far reaching and the ramifications loom large."

The fact that attention is paid to women's unique health needs is "an exciting revolution," according to Dr. Marianne Legato, a physician, author of Eve's Rib and founder of the Partnership for Gender-Specific Medicine at Columbia University. "That in itself is a major change that's really only happened in the last ten years, but one that can ultimately help both women and men."
  


Dr. Cristina Beato

Such efforts have helped move the focus beyond the two areas that have most often defined women's health issues-breast cancer and reproductive diseases-and into a comprehensive approach to gender-specific medicine. For instance, since 1950 lung cancer mortality rates for women have increased an estimated 600 percent, Shapiro said.

And according to Dr. Cristina Beato, the principal Deputy Assistant Secretary for Health to Secretary of Health and Human Services Tommy Thompson, obesity rates have also increased, environmental concerns such as clean water and air pollution have broadened, the scope of women's health, and concern about heart disease has prompted increased advocacy for behavioral changes and federal preventative programs.
  
"We're living longer but we're picking up bad habits along the way," said Beato. "We've become good on treatment but lousy on prevention."


Dr. Judith Reichman

Still, most women under 45 years of age seem more concerned about breast cancer or reproductive cancer than anything else, according to Glamour magazine Editor-in-Chief Cindi Leive. "The reality, though, is that they are more likely to die from heart disease or even a car accident," said Leive.

The perceptions remain in part due to differing medical opinions throughout the years and the amount of information now available through the Internet, which can be difficult to navigate.
  
"It can be confusing," said Dr. Judith Reichman (Barnard '66), gynecologist, obstetrician, and medical contributor for NBC's "Today Show." "Reporting from various studies in the media can have a huge impact on the public's perception and our quality of life. But it's essential that each patient is treated uniquely and individually."


Faye Wattleton and Gina Kolata

What is clear to professionals and patients alike is that women must "take personal responsibility for their health," said Faye Wattleton, president of The Center for the Advancement of Women, a research, education, and advocacy organization created in 1995. "Especially for those of us in the privileged class, we must remember it's all of our responsibility, since so many don't have access to care."
  
With over 45 million people lacking health insurance in the United States, Beato said health literacy "is the key to empowering women and eliminating health care disparities."

 

 

WOMEN AND HEALTHCARE: A CRITICAL ANALYSIS

Access to Care and Information Are Stumbling Blocks in Women's Health Progress


Byllye Avery

When Byllye Avery took her children to the dentist for their regular check up, she decided to ask him about a chronic toothache of her own. The dentist suggested she should have the tooth pulled and Avery found herself in the patient's chair. She left the office with one less tooth, amazed at how quickly her dentist had acted.
 
But later when Avery, a teacher, told colleagues in their Gainesville, Fla., school about the procedure, they wondered why the dentist had not performed a root canal instead. That was normal protocol, they said. But this was her children's dentist and Avery had trusted him without questioning his hasty decision. The more she thought about it, though, and discussed it with others, the more Avery concluded that the dentist's action could only be interpreted in one way: racism. 
  
That was 1981. Avery went on to start the National Black Women's Health Project, and recently joined other health care specialists and advocates for a panel discussion at The Barnard Summit: Women and Health to address such issues of discrimination in healthcare, what progress has been made and the challenges that remain.

ABC News 20/20 Correspondent Lynn Sherrr, moderator of one of the three panel discussions, began by asking whether there still was a disparity between health care for women and men.


Judy Norsigian

"Discrimination is a tricky term," said Judy Norsigian, executive director and co-founder of the Boston Women's Health Book Collective and co-author of the groundbreaking book, Our Bodies, Ourselves. "There is a
huge problem with the amount of information out there (about health care) and a bigger problem of access to services. Women are often discriminated against in terms of prevention alone."
  
Traditional research, for instance, has long targeted men rather than women in helping shape medical opinion about both genders. According to Dr. Isaac Schiff, professor of gynecology at Harvard Medical School and chief of the Vincent Obstetrics and Gynecology Service at Massachusetts General Hospital, studies in the 1960s confirmed that estrogen did lead to heart disease for men while women were frequently given medicines that included it.
  
"Women had to wait 35 years to have a study confirm for them that estrogen increased their chances for heart disease," Schiff said, referring to the Women's Health Initiative study, which examined the effects of estrogen and progestin on post-menopausal women. The study was stopped in July 2002 because results showed participants were at an increased risk for heart disease, stroke and breast cancer.


Dr. Vivian Pinn

Because women tend to be more dependent on a spouse or the public sector for health care, insurance discrepancies have also created difficult situations for women struggling to access appropriate care. Women's mental health issues are being recognized as essential here and throughout the world, according to Dr. Vivian Pinn, director of the Office of Research on Women's Health at the National Institutes of Health, and yet few insurance plans include it.
  
"If you're lucky enough to have health insurance, it's unlikely it will cover mental health issues," said Elizabeth Wurtzel, author of Prozac Nation: Young and Depressed in America.
  
What changes have occurred are largely because women have begun to address them from within the system. Pinn believes that many changes are the result of "grass root efforts that led to changes in public policy requirements and laws," such as the 1993 law that requires the inclusion of women and minorities in medical studies. More women are entering the field and medical schools are training doctors to spend more time with patients in taking their histories seriously, said Ellen More, professor of history and medical humanities at the Institute for the Medical Humanities at the University of Texas Medical Branch.
  


Ellen More

"Input from women has filtered up to making some crucial changes," More said. "Now the most important thing we can do is get political again."
  
Avery also suggested that because more women have started to speak out and organize regarding these issues, conditions and treatment are improving. Before, she said, too many victims of abuse or domestic violence "participated in a conspiracy of silence because of their psychological distress. It's at least better today because women have started helping themselves," Avery said. "We need to keep at it, and develop a system that delivers health care to all people, giving access to everyone regardless of who they are or what their politics might be."

 

WOMEN AND WORLD HEALTH: A MATTER OF SURVIVAL

Economic Issues Affect Women's Health Status Around the Globe


For countless women around the world, basic health care is a matter of survival. Although gains have been made for women in Western countries, those in developing countries still find themselves trapped by poverty's far-reaching effects. If they cannot support their families, many will turn to prostitution to earn money and in the process risk their health through sexually transmitted diseases. And if there is a medical clinic available to
them, most lack the fundamental resources to access them.  


Dr. Afaf I. Meleis, Dr. Helene Gayle, Dr. Nafis Sadik

Unless radical steps are taken to address such economic challenges, health care advocates who gathered at The Barnard Summit were not optimistic about women's health conditions throughout the world.
  
"It was difficult to bring women's health issues to the agenda," said Dr. Nafis Sadik, special advisor to the United Nations Secretary General and special envoy for HIV/AIDS in Asia. "Family planning now is at least legal in many countries and many are beginning to discuss female mutilation and violence on women where neither before was possible. But so many [developing] countries have yet to address these issues."

Part of the problem is the destructive impact of poverty and the economic disparity between countries, according to economist Jeffrey Sachs, special advisor to the United Nations Secretary General and director of The Earth Institute at Columbia University. Sachs defined poverty as "a lack of access to services" as well as the "absence of life chances for millions of people," and said that today alone, thousands of people will die simply because they are poor.  


Jeffrey Sachs

"Getting out of poverty is complicated and involves things like health care development, linking economies, building roads, education, etc. The world community wants to eliminate poverty by encouraging rich countries to increase giving in helping the poorest of the poor," Sachs said. "The U.S. government said we couldn't afford it. Instead we're literally dropping $75 billion dollars on Iraq. We're putting more into the war in Iraq than we are in addressing the issues of disease and death."
 
Women are faced with difficult health risks as a result of poverty, said Dr. Helene Gayle (Barnard '76), director of HIV, Tuberculosis & Reproductive Health at the Bill & Melinda Gates Foundation. "Poverty is a
fundamental issue which leads to other issues," said Gayle. "Poor women get HIV because they enter the sex industry to put food on the table. HIV is the new paradigm lens through which to see how everything else affects them."
 
The solutions are clear and possible, experts said. Dr. Afaf Meleis, dean of the School of Nursing at the University of Pennsylvania and president of the International Council on Women's Health Issues, suggested that as more women come into the workforce, positive change could result in women's health progress. "But too many have remained in low income, low status, low image positions. The key will be to put our resources into developing women in these developing countries, not just men," Meleis said


Carolyn Hannon

The key also will be to look at what has worked and continue to support it, said Soledad P'Brien, NBC co-anchor of "Today-Weekend Edition" and moderator of the discussion. O'Brien asked panelists to emphasize what has been working. In response, Carolyn Hannan, director of the division for the advancement of women at the United Nations, suggested it is important to deal with grass roots efforts, village by village.

"We have to stop talking about 'the poor' and talk about poor women and poor men," Hannan said. "We need to look at the total picture. For instance, we're even starting to look at what makes men [in these villages] violent in hopes of moving men and women partnerships forward." Next year, Hannan said the United Nations would discuss for the first time how men and boys can become involved in progress toward equality of the sexes.

Gayle agreed that a critical element in addressing these issues is to learn from those already in the field. "People in developing countries have a lot to teach us on domestic issues," Gayle said. "Involvement in communities overseas can teach us how to be better involved here in our own communities. In a country as rich as ours, there are far too many disparities that exist. So the question becomes how can we be better global citizens in responding to these issues?"
   
Summarizing the many questions and challenges involved in progress on women's health issues around the globe, it is important to take responsibility both on a personal basis and as advocates and professionals, said Barnard President Judith Shapiro.

"We need to think more rationally about health risks and the system and then make hard decisions about what's most important. Prevention is a lot more cost effective," Shapiro said. "Health care issues don't exist in
solitude; they are enmeshed in social, cultural, and political spheres. That's why we must be informed citizens as well."

Your comments are welcome. To see video or transcripts from the Summit, visit the Kaiser Family Foundation web site by clicking here. For additional information, please contact: Suzanne Trimel, Vice President for Public Affairs, Barnard College, strimel@barnard.edu

Telephone: 212-626-6536• Fax: 212-290-1478 • E-mail: summit@barnard.edu